Family Functioning and Parental Stress Among Caregivers of Individuals with Spina Bifida
DOI:
https://doi.org/10.24265/Palavras-chave:
family functioning, parental stress, spina bífida, caregiversResumo
Background: Spina bifida is a congenital malformation that places significant demands on care, affecting not only the affected individual but also their family environment, particularly primary caregivers. Objective: To analyze the relationship between family functioning—specifically family cohesion and adaptability—and parental stress among caregivers of individuals with spina bifida in Metropolitan Lima. Method: An explanatory design with latent variables and convenience sampling was used, involving 80 caregivers. The Family Adaptability and Cohesion Scale (FACES III) and the Parental Stress Index-Short Form (PSI-SF) were administered. Data analysis included descriptive statistics, Pearson correlations, and a structural equation model (SEM). Results: Negative associations were found between family functioning and dimensions of parental stress, with cohesion emerging as the most significant component. The structural model showed that family functioning significantly predicts parental stress (β = -.59, p < .029), explaining 34.5 % of its variance, with adequate fit indices (CFI = 1.00, TLI = 1.00, RMSEA = .000, SRMR = .009). Conclusion: These findings support the protective role of family functioning, especially emotional bonding, in the face of caregiving demands. The study concludes that family cohesion and organization are associated with reduced parental stress in this group. Furthermore, the study highlights the importance of developing psychoeducational interventions focused on family dynamics.
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Copyright (c) 2026 Andrea Esther Salinas Rosas
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